Research 10.01.15 Minutes

Attending:

Kimberly Lawless, Andy Johnson, Ugo Buy, Annette Valenta, Cynthia Herrera Lindstrom, Andy Boyd, Clyde Wheeler, Sarah Hall, Jackie Berger, Allen Randall, Ed Zawacki, Bob Sandusky, Henrik Aratyn, Colleen Kehoe, Neil Bahroos, Bill Hendrickson, Karen Dunn Lopez

  • Updates
    • Data Repository Committee
      • Members will be meeting individually with J. Fischer to discuss concerns
    • Data Governance
      • Waiting to find out whether to collaborate with Urbana
      • UIC will start, keep them informed, and work on collaboration
  • Data Management
    • Update
      • Creating a work plan with a number of recommendations for managing data
      • Went over progress
      • Discussion of tools to help with secure research environments
      • Suggestion to create a subcommittee focused on research data
      • Discussion of low risk data, where Research Committee should go from here
  • Clinical Data and the Center for Clinical & Translational Sciences Database
    • Overview
      • Overview of Center for Research Informatics, Clinical Research Data Warehouse
      • New Institutional Review Board protocol was approved to provide access to data
      • Discussion of initial goals of Clinical Research Data Warehouse, what has been accomplished since
      • Overview of process created by hospital to share clinical data with warehouse, how data is processed and store
      • Discussion of various regulations regarding data and related concerns
      • Overview of goals of being able to make requests for patient cohorts for clinical trials
    • Discussion
      • Overview of what is available through Cerner and related systems
      • Discussion on importance of tracking billing and integrating with patient data and other systems
      • Overview of security and risk mitigation
      • Discussion of risk level, what data is available to researchers in different cases
      • Discussion of plans for the future, emphasis on training & operational processes
      • Discussion of Virtual Machine project, campus research needs, mobile options
      • Note that privacy and security committee is looking to create HIPAA policies to address mobile issues